Showing posts with label awesome psoriasis blog. Show all posts
Showing posts with label awesome psoriasis blog. Show all posts

Friday, December 24, 2010

Found a new product to try, still not sure about it.

I managed to have another sad hiatus of blog posting. My apologies. I really do hate the winter. It's stressful, dry, and coooooooooooooolllllllllllldddddddd! I tend to slow down when it gets cold, and lately I've completely stopped. I've always been a fan of the sun, even before I got psoriasis at 16ish. I got a Pell grant (about $4800) for school, so life has taken a turn for the best, but I still don't have any health insurance, (of course) so the struggle continues. My mother started drinking this tea she found to help her with a problem she has, and it says guaranteed to work or your money back. Well thats cool, it works for her, and thats nice, but what's really nice, is she decided to order 2 more boxes, and with it came with a brochure and in that brochure they have a psoriasis product that also says "guaranteed or your money back!" So you can bet I bought that thing an hour later, and it got to my house just a few days ago.


I've been trying it (heres a link and no, I'm not an affiliate or anything either) It's been 4 days and I haven't notices any changes, other then I seem to have gotten some acne on my back :\ but I'm not sure if thats been the extreme amounts of sleep I've been getting or the product. Sadly, as much as I want to believe this works, if it doesn't, it's hardly worth even returning because it's really not all that expensive, so plz plz plz plz plz work! lol

Sunday, October 17, 2010

Stress.

Why do mac's only have one mouse button!?
I'm USUALLY an extremely stress free person. I'm very good at handling stress, by focusing on what isn't stressful about a situation, and keeping my cool. Well, like I said, I'm back in school. I'm taking a health and wellness class and for the final I decided to to an essay on Psoriasis. I figured, it was the perfect thing to do an essay on, since I already know the most about it, I have it, and it would be CAKE, right? Well It's due in about just under 2 weeks and I started to think, about how once I'm up there in front of my entire class, talking about it, everyone will know what I have and then go home and google it maybe. Not sure if you ever googled psoriasis but that shit ain't pretty. Considering my psoriasis looks 200% better than ANY of the pictures that come up, it's still stressful for me to think all of my classmates seeing all of these horrifying photos and immediately thinking about me. That is pretty much the exact opposite of what I want anyone to think about me. So this kind of stress is getting to me. I could just focus on the clear fact that there is like a 95% chance I will never see any of these classmates again in school, considering the particular class I'm taking isn't really part of any bachelor or AA degree, it's kind of a niche class, that doesn't exactly fall under elective choice, or required class for any degree. So pretty much everyone whos taking it is taking it because all their other elective choices were full, or they are taking one of the rare few certificates that require it, like the Wilderness skills certificate, the one I'm taking.

Monday, October 4, 2010

Making friends with psoriasis sufferers.

Do cleaning supplies agitate your psoriasis?

 Sometimes when I'm on social networking sites, or hell, even dating sites, I like to search for people with psoriasis, and send them messages, just to talk to real people who have it. I only have friends who have eczema, none who have psoriasis, so all I ever get to learn about it is what I hear or read online. Sometimes it's nice to be able to talk to someone else who is going through the same situation as you and compare notes. 

This particular person has it really bad. She lives in the UK and sometimes posts little journal entrees about her life dealing with psoriasis. I sent her a msg to see if she knew anything helpful, and she did have some very good tips:

Hello Travis,

My advice:

- Don't smoke - my psoriasis was much better after I quit but deteriorated again when I started smoking again. Smoking starves your skin of oxygen as it constricts blood flow.
- Give up caffeine. I know how difficult this one is, I've been there but it really does have a hugely beneficial effect.
- reduce your dairy to a minimum, I have as much milk/yoghurt/cheese as I need nutritionally for calcium intake but no more (and I have always loved dairy products!).
- Cook your food from scratch, convenience foods are a killer because of the added chemicals such as emulsifiers.
- Cut down the chemicals in your home. Seriously. the less harmful chemicals in the air, the better. I use incense rather than air freshener, a damp cloth rather than furniture polish (beezwax is great on good quality wood but expensive and labour intensive), a cheap washing powder (fewer optical brighteners and perfumes) and a pure fabric conditioner, a grapefruit based detergent for cleaning my bathroom and kitchen surfaces, bleach for the toilet and washing up liquid. Most of my friends and exes have cupboards and bathrooms full of fancy cleaning products, many of which are aerosols and great at cleaning but all of that hanging in the air really isn't good for your skin.
- I moisturise with olive oil, it may mean I smell like a Greek salad but it is great for my skin :o)
- Use dead sea salt products where you can - at the very least just sea salt in the bath. It stings if your psoriasis is bad but it really helps (I have been known to swim in the sea at midnight in January when going through a really bad phase!).
- Try to make plenty of you time and relax - stress is the worst.

I eat particularly well, I buy my fruit and veg off the market and cook from scratch, I should have more oily fish but otherwise, my diet is great. Don't get me wrong, I regularly bake and don't miss out on anything, I even have coffee once a day but cutting out the crap has made a huge difference. Lots of exercise helps too as that stimulates blood flow to the skin and increases the oxygen that it gets.

In January, it was the worst I have ever known it, it came up so fast that it felt like chemical burns and I couldn't turn my head or smile/yawn/laugh without my skin splitting and burning. People were looking at me horribly in the streets and in shops. I had to use a hydra-gel injected burns dressing (bought at considerable cost on the black market as it isn't available to the public) just to be able to get my clothes on. It was purely down to stress and I ended up with the late night swims and using sunbeds to fight it. As a rule though, I don't suffer too badly and most of the time, you would barely know that I had it.

The lifestyle changes weren't difficult to do and over the last few years, I have gotten so used to living and eating this way that I find certain things that I once enjoyed almost insulting to the nostrils/tastebuds!

I hope your skin isn't too bad and that you can at least keep it to a manageable level.

I hope that helped and wasn't condescending, I don't knnow how much of that you already do!

Take care and good luck,

-Name Withheld


Thursday, September 16, 2010

Time to try my most recent secret weapon...

Mmmm gooey. Kinda smells like a gritty shop soap, but I like it.

Well so I've been thinking about trying Champori for quite awhile now. The submitted testimonials pretty much speak for themselves, and I did a search for "does champori really work" on google and got linked to The National Psoriasis Foundations forum where (as I thought) someone had already asked this question. If you wanna read it, it's pretty informational (here). This was after I had already bought it. I got it in the mail yesterday. Just to see what they would say, I also sent them an email, asking if they had any kind of affiliate program and they responded promptly with:


"Dear Travis,
 
We don't. And are not looking for having one.
 
Regards,
 
Ollie M.
Champori"



Well that's pretty much exactly what I'd hoped I'd hear When psoriasis medications allow affiliate links and programs, anything you read about the product could then be biased in the interest of selling the product regardless of whether it works or not, just to make money.
I did learn however that if you send in a positive product testimonial, they will send you a large combo (cream & spray) for free. The reason that doesn't really bother me is because if it doesn't work, you obviously can't send in a testimonial, can you? So if this stuff does work I fully plan on sending one in, because I'm in school now (and totally broke without health insurance of course) so that little deal is quite nice I say.
It actually almost looks identical to what the Neem & Vaseline mix I made looked like.
I only paid for the cream, they sent this "sample" for free! And I'm glad they did because that cream is GOOEY. Not too happy about gobbing that all over my head before I go to school...
 Well so I'll be trying it out and we'll see how it goes. Here's a before pic I just took upstairs, so you can see where I'm at. Gimme a break, haven't shaved in a few days...




I will take more pictures in a few days. Keep in mind, all of the other psoriasis things I've tried aside from the shampoos, have been on my arms, and not my scalp. I've pretty much left my scalp untouched for the past few months because I just wear a lot of hats... well and I had enough hair to cover it up (until I cut it this morning) so it didn't bother me all that much. I cut it so I don't have to use as much of this precious cream getting it in my hair, instead of on my scalp. I find that with a buzz-cut like this it gets better application, and I use way less cream.

 

Thursday, September 2, 2010

NEVAR GIVE UP! lol

There are 12 psoriasis experiments in this cupboard alone.
Winners aren't winners because they gave up. Winners are winners because they keep trying. And thats what I'm doing. I just keep on tryin' stuff! I currently have about 20 different things I'm experimenting with. Well some I've given up on. Some I'm still taking. This cupboard isn't even half of the things I've tried in the past. Maybe I'll do a post of all the things in the past that HAVEN'T worked? Hmm maybe. Here's just an update on how my arms are looking. I've somewhat neglected the patch on my shin, and my head seems to be doing well enough that it isn't so bad I HAVE to wear a hat. I honestly think I can attribute that to the sunshine though. Shit's really gonna hit the fan this winter I think. (Sadly, as it does every winter.)

It looks pretty good in this photo, but irl theres still some pink spots.
This arm actually looks pretty good irl today, but I think it's just onna those days.
So yeah, the arms are looking pretty good today, but still visible. Mildly pink. I just got some Castol Oil on ebay for about 5 bucks, that I'll be trying probably starting Monday, because I'm about to go camping for a few days. Ugh, theres no escaping the binge drinking, but at least this will probably be the last camping trip of the summer, and I'm going back to school, so I'll have more things to keep me from drinking after this lololol

Friday, August 20, 2010

If I wasn't such an alcoholic, this would be much more simple...

My skin is gonna hate me tomorrow...

So technically I should have been done with the Fu Fang Qing Dai Wan, but nooooo I had to go float the river like 5 times and get wasted and go to the bar and have chugging contests and shotgun beers and be a total asshole to my body instead. heh heh, well I finally got the other 2 boxes (24 packets total) and I want to really finish this stuff, but I'm going to a wedding this weekend and I know I'm gonna get totally plastered because the girl getting married is my old best friend girl next door Rachel. I've also been slacking with the Neem and the Indigo Naturalis. BUT I do like the neem and think it is really good with removing the scales, but honestly, the sunlight from floating the river those few days seems to have done more help than anything I'm trying right now. It's kind of hard to get defined results from anything when your doing like 5 different things at once. (check previous posts to find out whats going on) 

So I've still got about 3.9 ounces of Neem and same for the Indigo Naturalis, and I gotta find a way to blaze through this stuff because I hate wasting anything so I think I'm just gonna put it in everything, my shampoo, my soap, friggin' everything.

Somethin' else I just read about! Ok so in case any of you wanna know, I also have a TWITTER (http://twitter.com/Psoriasistance) about this blog, where I tweet about different things I hear about, I also follow a lot of people who tweet about psoriasis. I'm kind of surprised, I actually hear about a lot of good stuff by just following anyone who tweets about psoriasis.
Click here to read about it...

This person (I forget who it was now, sorry!) tweeted about making a red clove and lavender healing salve by infusing both of them in olive oil (or they suggest apricot kernel oil) and mixing with beeswax so it's easier to apply. I think I'm gonna try this out when I get a chance. Both of those things grow naturally around where I live. (Pacific Northwest) If I get around to harvesting the stuff and actually doing it (I really hope I do) I'll take photos and let you all know how it turns out.



I ALSO FOUND THIS PAGE which I fully plan on coming back to soon to do some more research, so I'll just put it here for anyone else who wants to check it out: http://hubpages.com/hub/Psoriasis-Herbal-Remedies

Tuesday, August 17, 2010

Stress? What stress?


So I went floating the river yet again yesterday and my wallet fall out of my truck. I realized this about 15 minutes after it happened, and by the time I got back to my parking spot, there it was, sitting there empty. Now, not too many things can make me mad. I've been fired from jobs, rear-ended, rear-ended other people on the freeway... stepped on a nail that went all the way through my foot... etc. But nothing makes me angry like getting something stolen from me. I was literally livid!! I was so angry I ran barefoot through bark and gravel the quarter mile from the parking spot to the river where everyone was drinking and talked to every separate group I found. It had to have been someone who JUST left, or JUST got there. Well long story short, I got over it and my cards all got canceled in time, so essentially all that I lost was the $65 in cash that was in it. Eh whatever, that can be replaced, but getting something taken from you sure is stressful, and psoriasis sure loves stress. Since I'm already over it, I'm thinking there wasn't too much of an impact on my psoriasis, but I just can't help but think that I could have gone and bought some new psoriasis medication with that money! Like maybe Champori or something, I've been hearing that works pretty well.

Tuesday, August 10, 2010

Tattoos-shmatoos

Well in the end of 2008 I got 2 bigass tattoos on both my arms, then proceeded to get totally drunk and float the river for like a week strait, which is pretty much the dumbest thing you can do with a fresh tattoo is float the river and let it get lots of sunlight etc. Well long story short I now have psoriasis on both my arms. Boo-hoo :(


As my last post stated I started trying out this weird mixture of neem powder and Indigo Naturalis mixed with DMSO and put a little of each to each arm. This post is to kind of show you how I did that.

Oh P.S. I'm not retarded and have my lefts and rights wrong, all of these pics were taken in mirrors haha


Heres my left arm shortly after it was done, before it got psoriasis.. 

And the right arm shortly after it was done, before P..
My left arm as it looks right now (8-10-2010)
my right arm as it is now (8-10-2010)
My left arm with the Indigo Naturalis mixture on it
My right arm with Neem mixture on it.
So after applying both, I'd probably say the arm with the Neem on it started to really itch as it started to dry. Well they both really started to itch when they were drying I must say they both looked pretty good after I washed them off a half hour later. I've done this for 3 days now (wake up put the stuff on, fart around on the computer for about an hour or so then hop in the shower and wash them off) I forgot to take a picture of them after the treatment to take a pic for update so I'll try to remember to do that tomorrow and post some update pics. Not sure if its doing anything substantial yet but it does feel and look a little bit better. Like just how P looks when all the scales are gone and the fresh new skin is showing. But we all know that sweet stage only happens about once every 4-5 days. I'll try to update tomorrow..

Monday, August 9, 2010

Things I'm trying out, Neem powder and Indigo Naturalis powder

I'm just gonna post some pictures of a few things I will be trying in the next few months...

Fu Fang Qing Dai Wan

I don't even remember where I heard about this stuff, I think I was just googling psoriasis treatments or something (I'm constantly researching over and over /reading articles randomly for new clues) I actually got a box of this in the mail yesterday and started taking it. It doesn't really taste like anything, well kinda just a little gritty like herbs... the lady I bought them from on Ebay told me to eat 3 packets a day er well drink 3 packets a day just drink them down with water. It's kinda hard but I'll get used to it. I ate 3 packets then decided to go to a birthday party out in Seattle and drank some liquor (I know, I'm terrible!) so I'm gonna wait a day or to to pick it back up and do it right. I bought 3 boxes, (12 packets each) so essencially I have enough for 12 days worth if I'm totally loyal to it and dont skip etc, and the lady said I'd need AT LEAST 3 boxes, I will try to take em all faithfully starting in a few days to see how if it works and if it does, see if 12 days worth is worth the like 22 bucks it cost to buy all 3 boxes.

Oh yeah thats right, now I remember how I came across that Fu-Fang. I typed Psoriasis in Yahoo answers and started just reading away and I heard of a lot of people who were using Champori to get rid of their psoriasis, but i didn't feel like spending like 66 bucks on a 4 oz thing of it so I was looking at the ingredients of Champori and I guess the main ingredient is Indigo naturalis which is a Chinese herb which is also known as Qing dai. according to http://indigonaturalis.com/  so I decided to google that and see what I could learn about it and thats when I stumbled upon this: 
http://eastearthtrade.com/indigonaturalisqingdai4ozpowder.aspx


I just decided to up and buy it (4 oz for about 23 bucks) because I got into a little bit of a self-medicating spree. While looking at that I ran across Neem powder. (Also on the same site, so I also bought 4 oz of that for about 6 bucks shipped) They got to my house in about 4 days.. not bad!
http://eastearthtrade.com/neem-4ozpowder.aspx





Now, although that vid doesn't really say anything about psoriasis victims, It came up right next to the indigo naturalis on the east Earth Trade site as a potential item for psoriasis. It's not directly for psoriasis but it does say it's very impressive for acne and other skin problems, and this site (http://www.neemgenie.co.uk/psoriasis.html) does say a lot about it working for psoriasis. I did some research into how I could maybe use all this powder I'll be getting and some sources suggested it can be mixed with pretty much anything. (shampoo, body wash lotions etc.) A long time ago I was doing random research about something (I forget what) but I ended up buying some DMSO Gel (Dimethyl sulfoxide) because I'm weird I guess and maybe thought I would find a way to try to make it work for psoriasis. Supposedly anything you mix with it will get carried through the skin really well or some shit... heres some better info if you wanna read:  http://www.dmso.org/articles/information/muir.htm
Fuck it, maybe this will work?

Well it's been pretty much sitting in my bathroom closet for 2 years and now I have all this powder with nothing to mix it in! BLING! haha ok so I figured I'd use it to mix with the powder and make a kinda lotion/gel thingy to spread on my arms.
Hoover M.D. tryin' new stuff haha!

I just poured a little bit... it's all an experiment at this moment... not exactly sure how much of what to use... but I'm sure this is how all the best inventions start out right?
So I mixed up these little bitches and there was thunder claps in the background and a hard rain started coming down... haha just kidding.
This is after the mixings, the Indigo was kinda hard to mix, it didn't take very well at first and was very gooey, also be careful, this stuff is what they supposedly used to dye blue-jeans with, so it stains pretty bad I hear...
The Neem mixed up pretty well, and was generally overall more salve-looking.


I'm kinda tired and I'm gonna go to bed, but my next post will have some actual pictures of what my psoriasis looks like and before and after pics of the first two days of applying this stuff!

Theres a lot of other things I plan to try later, only because I already paid for FuFangQingDaiWan and and the powders that i need to use up before I buy anything else.